Skip to content

Need help now? Call our 24/7 Helpline 01983 292 405   hello@brainstrust.org.uk

Facebook Twitter Linkedin Instagram
  • Why we’re here
  • I think my child
    has a brain tumour
    • Signs and symptoms
    • The brain
    • What is a brain tumour
  • My child has
    a brain tumour
    • Diagnosing a brain tumour
      • Scans
        • Sedation and general anaesthesia for scanning
      • Scanxiety
      • Additional testing
      • Biopsy
      • Childhood brain tumour types
    • Treatment
      • Radiotherapy
      • Proton beam therapy
      • Chemotherapy
      • Neurosurgery
      • Steroids for childhood brain tumours
      • Watch and wait (active monitoring)
    • Living with a brain tumour
      • Fatigue
      • Behaviour and personality change
      • Physical late effects
      • My child’s brain tumour has come back
      • End of treatment and follow-up
    • Supporting you
      • Coaching and counselling
      • Caring for someone with a brain tumour
      • Connecting with others
      • Communication
      • Travel assistance
      • Employment and financial support
      • Events
    • Resources
      • Brain box
      • Know hows
    • Patient stories
  • Healthcare
    professionals
  • Why we’re here
  • I think my child
    has a brain tumour
    • Signs and symptoms
    • The brain
    • What is a brain tumour
  • My child has
    a brain tumour
    • Diagnosing a brain tumour
      • Scans
        • Sedation and general anaesthesia for scanning
      • Scanxiety
      • Additional testing
      • Biopsy
      • Childhood brain tumour types
    • Treatment
      • Radiotherapy
      • Proton beam therapy
      • Chemotherapy
      • Neurosurgery
      • Steroids for childhood brain tumours
      • Watch and wait (active monitoring)
    • Living with a brain tumour
      • Fatigue
      • Behaviour and personality change
      • Physical late effects
      • My child’s brain tumour has come back
      • End of treatment and follow-up
    • Supporting you
      • Coaching and counselling
      • Caring for someone with a brain tumour
      • Connecting with others
      • Communication
      • Travel assistance
      • Employment and financial support
      • Events
    • Resources
      • Brain box
      • Know hows
    • Patient stories
  • Healthcare
    professionals

Donate

    Patient stories

    It’s hard to hear that your child has a brain tumour but approximately 500 each year are diagnosed with a brain tumour. Hear are some stories from our little brainstrust community, if you want to speak to other parents who understand get in touch.

    If you have a story that you’d like to tell, please do email hello@brainstrust.org.uk.

    Leighton’s story

    Freya’s story

    Jacob’s story

    Noah’s story

    Oliver’s story

    Bailey’s story

    © 2021 brainstrust | Contact us | Privacy

    Registered with the Charity Commission for England and Wales as Charity No. 1114634 and with the Office of the Scottish Charity Regulator as Charity No. SC044642

    Sign up to our mailing list
    Follow us on Facebook
    Follow us on Twitter
    Follow us on Youtube
    Follow us on Instagram