Living with a brain tumour

The side effects your child may experience are dependent on the tumour type, the tumour location and the treatment they have had. Some children experience short-term effects during treatment and weeks after treatment has been completed. Keep communication open with your child’s healthcare team, and remember you know your child best. If something does not look or feel right, get in touch with your key healthcare contact. Nothing is insignificant when it comes to your child’s well-being.

Behaviour and personality change

At brainstrust, we think behaviour and personality change (BPC) is up there with fatigue. This section is to help you understand a little more about BPC.

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We know that one of the most frequent and distressing problems described by people living with a brain tumour is fatigue. This section discusses the different ways fatigue can present and some strategies you can try with your child.

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Physical late effects

Many children will live with some late effects after the treatment has finished. This section goes over some effects your child may experience and who can help to manage these.

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